Going to the Airport

So this is a story that I must share. Today Nathan went to an event called Wings of Wonder at the airport. It was absolutely wonderful.

We met the founder, Maria and her father and her story blew me away. Maria had her pilot's license and was on her way to becoming an Air Force pilot. She was preparing to leave for basic training when she got the cancer diagnosis that halted her plans. In 2003 she started Kids in Flight. She said all of her troubles always seemed so small when she was in the air and wanted to share that experience with children and their families with chronic illnesses.

Her story is so touching because it shows how God can redirect our lives. Maria thought her calling was to fly in the military but God had another plan and now she's helping tons of families just like ours.

It's funny because lately Nathan has been heavy into helicopters and has been running around the house with a toy helicopter. Then this past Monday he found a toys r us magazine that came in the mail and began begging for a train and a helicopter.

Well fast forward to today as soon as we get to the Wings of Wonder event there was a wonderful train exhibit where the children were allowed to work the trains and blow the horns etc. You should've seen how Nathan's face lit up. Next a helicopter flew in and landed right in front of him!!!!! He was literally on cloud nine!

There was so much to see and do! And in a few months Nathan gets to go back for his very own plane ride! I cannot wait to see his face!

I'm so thankful to Maria and her family for this event. It was amazing. As we were leaving Maria invited us to a fund raiser that was held this evening. Since Nathan's counts are ok and the crowd was full of people who understood the compromised immune system thing we accepted! And I'm so glad we did. It was an amazingly uplifting event. A lot of the volunteers from the afternoon were there (most of them were family members). And Nathan and Peyton were able to play with balloons and there was a live band and they were dancing and squealing. It was amazing.

Honestly I'm struggling to put into words our experience today. Sam and I said on the way home that we didn't even know how we were going to explain to people what happened today and the impact it had.

We spent a lot of time just talking to people who genuinely care for other people. The humbleness of this family was unbelievable. We definitely plan on keeping in touch and they told us to let them know if there's anything we need and honestly after a such a wonderful day full of great memories I told them I don't know if there's anything else they can do.

After this cancer experience is over a part of me wants to run and never look back. To erase cancer from our vocabulary and never speak of it again. Then another part of me strongly wants to do something for someone else but I'm not sure what. I don't think I necessarily want to start something of my own, there's so many great organizations out there that I wouldn't mind volunteering for, so I don't know if I need to start anything on my own or not. Like I said a part of me want to run but at times when I talk to another mother who just had a child diagnosed my heart goes out to them and I get flash backs of first hearing the news and in my heart I feel their pain and literally I've learned to care and love people like I never have before this. These families need support so I don't know if God will let me just walk away when it's all over.

Being in this situation is different, being forced to think about the mortality of your own child is hard and these kind of events are so important. It takes you out of your reality and for a moment you just forget everything and have fun. There were games, Nathan and Peyton sat in a helicopter and the cock pit of a plane. They won prizes. There were so many fun things and when you have a child who's usually restricted as to where he can go, days like today are so valuable. If it wasn't for organizations like this our days would be spent going to hospitals with very little outside fun. But because of this organization we're able to escape our reality.

Maria and her Dad provided so much hope for us. Her Dad was able to offer encouragement to Sam, father to father. We've been to several events like this since Nathan's been diagnosed and been put in these positions where we are so thankful to the people who held the event and we are so thankful to them.

So today I just say thank you Lord for a wonderful day. I thank him for being able to meet this family. The people I've met along this journey have changed my life. Seriously if I could I would one day love to blog about all of the people I met and share their stories but due to privacy issues I won't do that but I wish I could. They've changed me, all have inspired to me and our lives are so much better because I've met them.

Please check back over the next week, I took a ton of pictures but haven't been able to upload them yet but I want to share them.

God Bless

Just some random thoughts.

My comfort in my suffering is this;

your promise preserves my life.

Psalm 119:50

Last weekend was pretty horrible, I was a bag of water works, crying most of the day Saturday into Sunday. I'd be doing dishes and tears would well up and begin to fall and the least little thing would trigger it.

I prayed and I took my cries to God saying "remember how you heard Hannah when she prayed to you? Well please hear me!" God always shows up when I pray, it's not always immediate but He still gives me comfort in little ways and I really yearned for His comfort this past weekend.

After praying that prayer I went and got my Bible to read I Samuel I believe in seeking God in prayer but to hear His voice I turn to His word. I came across the familiar passage of Hannah saying if God would just give her a son then she'd give him to the Lord all the days of his life. And I had to pause there. For some reason it just struck me of how Hannah prayed and then her reaction to God's gift.

I've had to keep giving Nathan over to the Lord. I did it again this weekend and I know when another tearful day comes up then I'll do it again and honestly when I remind myself that he belongs to God first and that God is still in control of this situation then I feel better.

I also read how Hannah rejoiced after giving Samuel to the Lord. She was happy! She praised God knowing she wasn't going to raise the son he gave her not even knowing if she'd have more children. The gift she yearned for she gave back and look how God used Samuel!

Already God has used this experience with Nathan to show me a lot of things.

I knew that Nathan was fantastic before but my respect for him as a parent has soared. God has showed me how to handle a difficult situation with grace just by watching him.

And any of you who truly knows Nathan knows he has what I like to call a quiet strength. He's an observer, if he sees something once he'll figure it out, he's always been the kind of kid who doesn't need things repeated over and over, if he sees it once I can guarantee as a parent he's got it. He learned his routine at the hospital really quick and he adjusted to this new life quicker than I did.

I pray constantly that Nathan and Peyton will love each other and remain close as brother and sister and just recently I noticed what an amazing big brother he is (it also helps that he has an awesome little sister ;-). But he helps her when she falls, I'll be in the kitchen and just hear "you alright Peyton?" Although they fight occasionally, he's really good at making sure she's taken care of, he makes sure she gets a piece of what he has and if he has a toy in his hand then he makes sure she has a toy in hers.

I've been a stay at home mother for almost 4 years now and most of those were spent on the go, from one play group to another and for the first time since Nathan was born we spent the entire year just at home. We've come up with a ton of things to do around the house and at times I felt would be nice if I could take him somewhere, but that's just me, if Nathan has Peyton here and some toys and books than he's good, that alone makes him happy.

I can't tell you how many people I've met who are going through or have been through the same or very similar circumstances with a chronically ill child who've touched me. I had a talk with one of Nathan's nurse who's been in Oncology for a very long time and she told me it never ceases to amaze her that the majority of the families that she's come in contact with who've been afflicted with child hood families have been the nicest people ever. People who you look at and go "why them?" And I have to agree with her. These people have become my family and my friends. Although we all wish we would've met under different circumstances I will proudly say my life is better because they're a part of it now and I'm so blessed to know them.

I've created a ton of memories over this past year. A ton of little things I store away in my heart watching both Nathan and Peyton. I try not to worry about the future. God told me tomorrow will worry about itself. At times I still get scared and lonely because this experience is truly like we're on an island but then I remember that I'm not alone that God comforts me and I can go to Him for that comfort and He rises to the occasion.

Updates

Hi everyone, here's some really quick updates.

First my friend's little guy has been moved out of the ICU!!!!!! Thank you all for your prayers, he's still in the hospital but he's out of the ICU and we're happy about that!

Nathan got his results back and well we're seeking a second opinion right now on what we should do moving forward. I'm not really going to share them on this blog not because I don't want you to know but they're quite confusing and I don't want to leave you all thinking, 'huh?' I'll just say they were half good and half what we didn't want to hear.

We still trust our medical team but it doesn't hurt to seek an outside opinion which is what we're going to do. Right now Nathan is set to undergo testing again in 4 weeks instead of the standard 15 so his medical team can keep a closer eye on things.

Last week was pretty confusing and honestly kind of hard but again moving forward we're trusting God with our son and truthfully not worrying about it. All four of us are together right now and that's really been my focus lately and what I truly care about.

There's a song I just heard recently that's kind of become my motto. I'm not a country western fan but I've fallen in love with the lyrics of the below song. Now don't get all worked up when hearing it because right now Nathan is still doing ok but even before his results I've kind of taken on the below song as our household anthem and we've just been living life lately. We're limited in where we can go and what we can do but we live it up anyway!